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New?: How To section: ..... There, you will find basic usage help: And, an Introductory Post How To: Keep in mind, when you look through the posts on the forums, the most recent posts are some times on the last pages of those topics (like the introductory topics that have many posts). So, look for page #'s at the top right of posts with multiple pages. To see the most recent posts, click your mouse on that last page #. Remember, You Reap What You Sow. If you help others, they will, in turn, help you.

Guest Announcements

New?: How To section: ..... There, you will find basic usage help:

And, an Introductory Post How To:

Keep in mind, when you look through the posts on the forums, the most recent posts are some times on the last pages of those topics (like the introductory topics that have many posts). So, look for page #'s at the top right of posts with multiple pages. To see the most recent posts, click your mouse on that last page #.

Remember, You Reap What You Sow. If you help others, they will, in turn, help you.

It is currently Fri Aug 14, 2026 12:28 pm

PUBLICLY VIEWABLE: Rare Cancer Forum Information & General Forums

Topics

Posts

Last post

Welcome, Read Me First - Public
All new users MUST read these first.

7 Topics

7 Posts

Last post by sharon
Sun Aug 09, 2009 5:38 pm
Posting How To's/Question/Suggestions - Public
Please read before posting. Enter questions, problems, and suggestions.

17 Topics

52 Posts

Last post by ValleyoftheSun
Thu Jun 02, 2022 8:13 am
RCA Newsletters & Announcements

8 Topics

32 Posts

Last post by mp327
Sun May 26, 2013 4:10 am
Common Interest Topics

19 Topics

47 Posts

Last post by Cazz
Tue Jun 23, 2015 2:59 pm
Laws & Political Issues That Affect Cancer Patients - Any Country
Laws and political issues that impact cancer patients

3 Topics

17 Posts

Last post by gdpawel
Sun Feb 20, 2011 9:30 pm
Local Support Groups, Organizations, Events, Fundraising, & Conferences

11 Topics

13 Posts

Last post by gdpawel
Sun Feb 20, 2011 9:21 pm
Prayer Requests

21 Topics

54 Posts

Last post by dartbit
Fri Oct 10, 2014 12:28 am
Seeking Others - Helping Others
Looking for others with your cancer? Want to help others? Enter info here.

68 Topics

255 Posts

Last post by margopenelope
Tue May 21, 2019 8:09 am

PUBLICLY VIEWABLE: Personal Stories & Memorials

Topics

Posts

Last post

In Memorium - ** Publicly Viewable **
Stories and memorials for those who have passed away from Rare Cancers.

19 Topics

22 Posts

Last post by sharon
Thu Dec 06, 2012 10:00 am
Submit Your Personal Story - ** Publicly Viewable **
Please read, and agree to, the Agreement Announcement prior to posting your personal story.

106 Topics

126 Posts

Last post by AztroRover
Tue Dec 12, 2023 12:17 pm
Video Personal Stories - ** Publicly Viewable **
YouTube and videos or rare cancer patient / survivor stories.

23 Topics

23 Posts

Last post by sharon
Sat Jul 21, 2012 10:43 am

PRIVATE: Rare Adrenal, Bladder, Kidney, Urethral, & Urinary Tract

Topics

Posts

Last post

Adrenocortical Carcinoma & Adrenal Cancer
aka: adrenal cortical, adrenal cortex cancer, or adrenal gland
Moderator: anna

56 Topics

655 Posts

Last post by sharon
Sun Mar 06, 2022 11:33 am
Kidney, Bladder, & Urinary Tract
carcinoma (chromophobe renal cell, collecting duct, medullary renal cell, mucinous tubular, rhabdoid tumor, sarcomatoid, signet ring cell, spindle cell, transitional cell, translocation cell) renal sarcoma, and wilms tumor

39 Topics

236 Posts

Last post by Galleria
Sat Jan 22, 2022 8:48 am

PRIVATE: Rare Anal, Colorectal, Gastrointestinal & Peritoneal Tumors & Cancers

Topics

Posts

Last post

Anal (Anus) & Rare Rectal Cancers
adenocarcinoma basaloid, cloacogenic, epidermoid, lymphoma, Paget's, sarcoma and small cell, squamous cell, transitional cell carcinomas, adenosquamous of the rectum
Moderator: mp327
Subforum: Archived Posts 2006-2010

731 Topics

18249 Posts

Last post by AztroRover
Tue Dec 12, 2023 2:34 pm
Appendiceal Carcinoma (Cancer of the Appendix)
aka: appendix, adenocarcinoma, goblet, mucinous, signet-ring cell

129 Topics

2001 Posts

Last post by David
Sat Feb 04, 2023 10:41 am
Bile Duct, Pancreas, Gall Bladder & Cholangiocarcinoma
aka: cholangiocarcinoma, bile duct cancer, gall bladder cancer, perihilar, distal & intrahepatic, ampullary, ampulla of Vater, adenocarcinoma, hereditary, Klatskin tumors

83 Topics

912 Posts

Last post by margia
Sat Nov 06, 2021 10:08 pm
Carcinoid
gastroenteropancreatic neuroendocrine tumor

33 Topics

292 Posts

Last post by sharon
Thu Mar 16, 2023 5:08 pm
Neuroendocrine Tumors (NET)
Other Than Carcinoid

74 Topics

783 Posts

Last post by sharon
Sun Apr 23, 2023 4:17 pm
Peritoneal Cancer
of the peritoneum: mesothelioma, desmoplastic small round cell tumors, angiosarcoma, leiomyomatosis peritonealis disseminata, LPD, hemangiomatosis, primary peritoneal cancer, carcinoma, cystic mesothelioma, multilocular peritoneal inclusion cyst, serous surface papillary carcinoma, psammomacarcinoma

14 Topics

63 Posts

Last post by sharon
Wed Jul 19, 2023 7:58 am
Pseudomyxoma Peritonei & Mucinous Tumors
mucinous tumors including adenocarcinoma, carcinomatosis, disseminated peritoneal adenomucinosis, intraductal papillary, ovarian, peritoneal adenomucinosis, peritoneal mucinous carcinomatosis, pseudomyxoma peritonei

22 Topics

341 Posts

Last post by jhoov333
Tue Feb 19, 2019 5:37 pm
Small Intestine Cancer (Small Bowel)
aka: small bowel, jejunum, ileum, duodenum, jejunal, ileal, and duodenal cancers
Moderator: graceandgrit

70 Topics

903 Posts

Last post by Butterfly2008
Mon Feb 24, 2020 11:14 am

PRIVATE: Rare Blood, Lymph, & Bone Marrow Cancers

Topics

Posts

Last post

Leukemia
T-cell Acute Lymphoblastic Leukemia (T-ALL) ,T-Cell Large Granular Lymphocyte Leukemia (T-LGLL),

4 Topics

5 Posts

Last post by sharon
Tue Mar 14, 2017 6:56 am
Lymphoma
T-Cell Lymphoblastic Lymphoma (T-LBL)

4 Topics

4 Posts

Last post by stripe34
Fri Sep 25, 2015 3:04 am

PRIVATE: Rare Breast Tumors & Cancers - Malignant, Borderline, Benign, Mixed

Topics

Posts

Last post

Adenoid Cystic Carcinoma of the Breast
aka: ACC, ACCB, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma

52 Topics

610 Posts

Last post by sharon
Mon Mar 30, 2020 9:26 am
Breast Tumors & Cancers - Rare Adult & Pediatric
Rare breast tumors & cancers, not otherwise grouped.

22 Topics

62 Posts

Last post by fenbenlab
Mon Jun 07, 2021 10:14 am
Common Interest Topics
Mastectomy, lumpectomy, radiotherapy, chemotherapy, surgical reconstruction, plastic surgery

7 Topics

32 Posts

Last post by movetomaui
Wed Jan 16, 2013 11:50 am
Phyllodes Breast Tumors & Cancer
aka: cystosarcoma phyllodes, phylloides
Subforum: Phyllodes Tumors - Archived Posts

350 Topics

6186 Posts

Last post by susan_83
Sun Sep 08, 2019 6:35 am

PRIVATE: Rare Head, Neck & Oral Tumors & Cancers - Malignant, Borderline, Benign

Topics

Posts

Last post

Acinic Cell Carcinoma

36 Topics

404 Posts

Last post by smartis
Sat Nov 07, 2020 11:45 pm
Adenoid Cystic Carcinoma
aka: ACC, AdCC, adencyst, adenocystic, adenoidcystic, cribriform, cylindroma (incorrectly), cylindromatous carcinoma

154 Topics

1959 Posts

Last post by wxin77
Sat Dec 26, 2020 12:46 pm
Eye Cancer & Tumors
basal, carcinoma, cell, choroidal, ciliary body, conjuctival, conjuctiva, eyelid, intraocular, iris, kaposi's, lacrimal gland adenoid cystic carcinoma, lymphoma, melanoma, retinoblastoma, rhabdomyosarcoma, sabaceous, sarcoma, squamous

12 Topics

72 Posts

Last post by Maggie
Tue Apr 23, 2013 9:24 am
Head, Neck, & Oral Cancers - Rare
Rare & childhood cancers of the head, neck, and oral (mouth) body sites; including thyroid, nasal and paranasal cancers, Hurthle cell carcinoma, insular thyroid cancer, lymphoma, melanoma, nasopharyngeal, rare squamous cell, sarcoma; Tongue, tonsil , and trachea cancers,

40 Topics

226 Posts

Last post by Lisamarie306
Wed Feb 16, 2022 2:21 pm

PRIVATE: Sarcoma

Topics

Posts

Last post

Sarcoma, Soft Tissue, & Rare Bone Tumors
Carcinosarcima, chondrosarcoma, epithelioid, hemangiopericytoma, histiocytic, myxofibrosarcoma, osteosarcoma, rhabdomyosarcoma, soft tissue, synovial, undifferentiated pleomorphic, Wilms Tumor

79 Topics

773 Posts

Last post by Nata8hj
Mon Feb 10, 2020 5:34 pm
Angiosarcoma
Bone, cutaneous, epithelioid, head & neck, soft tissue,

7 Topics

12 Posts

Last post by Odessa
Sat Feb 06, 2010 4:10 pm
Clear Cell Sarcoma
aka: malignant melanoma of soft parts, soft tissue melanoma, melanoma of tendons & aponeuroses

4 Topics

27 Posts

Last post by Janet brown78
Sun Sep 09, 2018 7:23 pm
Dermatofibrosarcoma protuberans - DFSP

8 Topics

168 Posts

Last post by Benette
Thu Oct 11, 2018 9:20 am
Ewing's Family of Tumors
Askin's tumor, Ewings sarcoma, extraosseous sarcoma, primitive neuroectodermal tumor, PNET

6 Topics

17 Posts

Last post by Bormimern
Sun Jan 10, 2010 7:04 pm
Fibrosarcoma
ameloblastic, infantile (congenital), malignant schwannoma, odontogenic

5 Topics

10 Posts

Last post by sharon
Thu Jun 27, 2019 9:28 am
Gastrointestinal Stromal Tumor - GIST

9 Topics

17 Posts

Last post by mikey marshell
Sat Jun 06, 2015 9:01 pm
Leiomyosarcoma - LMS

13 Topics

62 Posts

Last post by woody1022
Tue Feb 10, 2015 12:59 pm
Liposarcoma

5 Topics

13 Posts

Last post by CrazyCellist
Tue May 03, 2016 10:22 am
Malignant fibrous histiocytoma - MFH

5 Topics

7 Posts

Last post by sharon
Fri Jul 17, 2009 1:40 pm

PRIVATE: Rare Cancers (Malignant), Borderline, Mixed Cell, Benign Tumors

Topics

Posts

Last post

Adenocarcinoma, Carcinoma, & Unknown Primary Cancers

11 Topics

64 Posts

Last post by ElleM
Tue Feb 09, 2021 11:25 am
Brain, Spinal Cord, & CNS Tumors - Rare
brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma

42 Topics

249 Posts

Last post by sharon
Wed Jul 19, 2023 8:21 am
Hemangioendothelioma - Malignant & Benign

19 Topics

155 Posts

Last post by sharon
Mon Jan 25, 2021 5:14 pm
Lung Cancers - Rare
Including mesothelioma, neuroendocrine cancer of the lungs; including a subforum for pleuropulmonary blastoma, ppb, pulmonary blastoma
Subforum: Pleuropulmonary Blastoma

11 Topics

19 Posts

Last post by Amy2013
Mon Dec 02, 2013 11:37 am
Reproductive - female
Not Otherwise Listed

11 Topics

50 Posts

Last post by Susannec88
Sun Aug 19, 2018 2:58 pm
Skin and Sweat, & Sebaceous Gland Cancers - Rare
digitial papillary, eccrine, apocrine, mucinous eccrine, microcystic adenexal carcinoma, adenoid cystic eccrine carcinoma, sweat gland adenocarcinoma, cutaneous T-cell lymphoma

16 Topics

158 Posts

Last post by Sippy
Wed Nov 13, 2019 6:55 am
Teratoma, Sex Cord–Stromal, & Germ Cell Tumors
choriocarcinoma, dermoid, dysgerminoma, embryonal carcinoma, endodermal sinus tumor, EGGCT, extradonadel & germ cell tumors, GCT, germinoma, gonadoblastoma, intracranial germ cell tumors, ICGCT, mediastinal germ cell tumors, MGCT, nongerminomas, nongerminomatous germ cell tumors, nonseminomatous germ cell tumors, NS-GCT, retroperitoneal germ cell tumors, RGCT, sacrococcygeal teratoma, seminoma, teratomas, yolk sac tumor

16 Topics

80 Posts

Last post by SteveWarner
Mon Mar 21, 2022 9:08 am
Rare Male Reproductive & Genital Cancers.
Rare Male Reproductive & Genital Cancers.

6 Topics

13 Posts

Last post by sharon
Sun Dec 13, 2020 12:31 pm

<<		Week of August 14, 2026		>>

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Anniversary: Tymlee (33), gdpawel (30), ford.jd (29), bobm (28), nbmcpa (19), USHCS (18), BONDSERVANT (14), lsmwilcher (13), lolow (12), Juju71 (11), yellowmoon (10), bones (9), TimeZoned (8)

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The views and comments entered in these forums are personal experiences only. The contents of this forum, and the Rare Cancer Alliance website, should not be considered medical advice. Please review all information with your medical professionals.

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Week of August 14, 2026

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