Rare Cancer Support Forum

I am looking for families with children who have hepatoblastoma and trisomy 18. My son was diagnosed in April 2007 with mosaic trisomy 18, and then through a renal ultrasound, hepatoblastoma was found in June 2007. He has undergone a right lobe resection and started chemo in July 2007. After two rounds of chemo a ct scan showed another tumor. He just underwent a second liver surgery September 6, 2007. The pathology test showed that the tumor was dead.
I would like to get in contact with any other families who have done the chemo and what results they have had.